I’ve been struggling with my health for weeks and it seems to be getting worse; my ability to explain it is slowly leaking away. I’ve been trying to come up with an analogy of what my brain feels like. Sometimes, the words come out garbled, even reading a line of text, and I’m so distracted that if I don’t watch out I’m off on another topic entirely.
How does one describe having no energy but yet not being tired? Feeling “wrong” but not feeling sick? Especially when one’s brain is the problem in the first place and expected to do that thinking.
What I do know is that the internal feelings seems eerily connected and similar to the external symptoms that my son has struggled with for years. I find myself not wanting to get off the couch and attend to basic things, and wonder if that is what he feels like. I reach for thoughts that are no longer there and try to force out words that slip away like eels or change into the wrong words, and I recall all the times where at his worst, he wouldn’t even speak. A song with static plays while I try to read text, and I want to scream from the chaos. I recall his reaction to me talking too much – he screams at me to shut up. I’m 40, though, so I don’t.
The best I have come up with is the feeling of driving on icy roads. At first, the snow fell gently and lightly; it got in the way of my thinking but I could brush it aside, and normal operations of my brain felt like driving on soft snow that fell on dry ground. There is a surreal feeling; things aren’t quite the way I’m used to, but it’s fine, even pretty. In fact I’ve taken substances that make me feel this way, only this time I’ve not had anything to drink and yet feel a bit as if I have. Like driving on snow, everything works, you just take it a bit slower and try to enjoy the scenery. Most of the time, my mental road all feels fine and working. Then I put on the brake and for a second it just doesn’t do anything. I think, “I did put on the brake, right?” and then suddenly I feel myself slowing, back in control, wondering if anything unusual actually happened. When driving on snow, you pay more attention – slowly you realize all the times where the tires slip, just a little, but you don’t know for sure. Maybe it is your imagination…it feels fine right now.
Lately, though the mental roads are getting icy and slick. At times my brain can’t hold a thought from the sink to the fridge. Oh, I’m used to this – but usually it’s because I am driving too fast. I’m thinking of 10 things, and what to put in my tea is lowest of the list and so it takes a while for the gears to click in and bring it to the surface. But when my only task in the moment is making tea, I don’t expect black ice between the sink and the fridge. My coordination is off, and I need a wider road during those times. I reach for something and my hands don’t quite land where I put them. I look at the writing on my three out of four vials of spit for the lab test, and I see the writing decline over the course of the day. Yet, still, I tell myself it’s not a big deal – I probably just rested that one with the pretty handwriting on the table. Until I try that with the fourth, and am shaken when my name comes out stilted and jumpy.
I live in Colorado and the weather here varies not just from month to month, but from day to day and hour to hour. I should be used to this but I’m tired of having Colorado weather in my head. Earlier this week, my mental roads were very snowpacked and icy, and I was starting to panic. I laid down to read, and fell asleep. Though it took me an hour to clear the sleep from my head, I then had 5 hours of perfect clarity – exactly like a typical Colorado winter day once the snow has started to melt because the sun has come out. Then after a stressful situation, I could feel the snow in my head start to fall, like a blanket, obscuring everything I was trying to think about and even making my hands slippery and awkward on the keyboard.
Today has dawned sunny and bright, but with high winds – both literally and figuratively. The clouds on the horizon are fuzzy and tenuous, but the clouds in my head are starting to billow and threaten. It will be interesting to see what weather the future brings.